{"id":328262,"date":"2022-06-11T08:47:21","date_gmt":"2022-06-11T08:47:21","guid":{"rendered":"https:\/\/afrikmag.com\/var\/www\/vhosts\/afrikmag.compublic_html\/?p=328262"},"modified":"2022-06-11T08:47:36","modified_gmt":"2022-06-11T08:47:36","slug":"etats-unis-un-homme-ne-sans-machoire-trouve-lamour","status":"publish","type":"post","link":"https:\/\/afrikmag.com\/var\/www\/vhosts\/afrikmag.compublic_html\/etats-unis-un-homme-ne-sans-machoire-trouve-lamour\/","title":{"rendered":"\u00c9tats-Unis\u00a0: un homme n\u00e9 sans m\u00e2choire trouve l’amour"},"content":{"rendered":"\n

Un homme qui a \u00e9t\u00e9 victime de moqueries tout au long de sa vie a r\u00e9v\u00e9l\u00e9 qu’il ne laisse plus sa condition impacter sa vie.<\/p>\n\n\n\n

Joseph Williams, 41 ans, de Chicago, est n\u00e9 avec une maladie rare appel\u00e9e syndrome facial otofacial.<\/p>\n\n\n\n

\"\u00c9tats-Unis\u00a0:<\/a><\/figure>\n\n\n\n

Apr\u00e8s avoir rencontr\u00e9 sa femme, Vania, 39 ans, en 2019, les deux se sont mari\u00e9s en 2020. Joseph, qui ne conna\u00eet pas la cause du syndrome, communique par le langage des signes, les gestes, l’\u00e9criture de notes et l’utilisation de son t\u00e9l\u00e9phone.<\/p>\n\n\n\n

\"\u00c9tats-Unis\u00a0:<\/a><\/figure>\n\n\n\n

Il mange en introduisant des aliments m\u00e9lang\u00e9s dans son estomac par un tube. \u00ab \u00catre n\u00e9 sans m\u00e2choire a \u00e9t\u00e9 un choc pour ma m\u00e8re. J’\u00e9tais un jumeau, mais l’autre b\u00e9b\u00e9 est d\u00e9c\u00e9d\u00e9 avant notre naissance \u00bb, a-t-il d\u00e9clar\u00e9.<\/p>\n\n\n\n

\u00ab Quand je n’avais que quelques jours, on m’a emmen\u00e9 de l’Illinois, o\u00f9 je suis n\u00e9, \u00e0 Chicago, pour de multiples op\u00e9rations chirurgicales. J\u2019ai subi une greffe d’os et de peau pour essayer de me construire une m\u00e2choire, mais en grandissant, mon corps l’a rejet\u00e9e et l’op\u00e9ration a \u00e9chou\u00e9.<\/p>\n\n\n\n

\"\u00c9tats-Unis\u00a0:<\/a><\/figure>\n\n\n\n

J’ai \u00e9galement \u00e9t\u00e9 propos\u00e9 \u00e0 l’adoption, ce qui m’a permis de rencontrer ma famille adoptive. Grandir a \u00e9t\u00e9 difficile et \u00eatre n\u00e9 comme ainsi m’a caus\u00e9 beaucoup de probl\u00e8mes, mais j’ai essay\u00e9 de ne pas laisser cela m’affecter. Je ne peux pas manger, parler ou m\u00eame respirer correctement. J’ai un tube dans l’estomac dans lequel je peux placer de la nourriture m\u00e9lang\u00e9e. J’ai un tube dans le cou, appel\u00e9 trach\u00e9e, qui m’aide \u00e0 respirer.<\/p>\n\n\n\n

On m’a appris le langage des signes \u00e0 l’\u00e2ge de deux ans, pour m’aider \u00e0 communiquer. Mais depuis, j’ai trouv\u00e9 d’autres moyens de communiquer, comme prendre des notes et saisir sur mon t\u00e9l\u00e9phone. \u00bb<\/p>\n\n\n\n

Apr\u00e8s des ann\u00e9es de stigmatisation, Joseph a rencontr\u00e9 sa femme lorsqu\u2019il a commenc\u00e9 \u00e0 croire en lui.<\/p>\n\n\n\n

\"\u00c9tats-Unis\u00a0:<\/a><\/figure>\n\n\n\n

\u00ab Lorsque j’ai commenc\u00e9 \u00e0 croire en moi et \u00e0 r\u00e9aliser que je m\u00e9ritais mieux, j’ai fini par trouver ma femme. Nous nous sommes mari\u00e9s en 2020. Je suis s\u00fbr que les gens ne se seraient jamais attendus \u00e0 ce que je me marie. Pour \u00eatre honn\u00eate, je ne pensais pas que je le ferais non plus. \u00bb<\/p>\n\n\n\n

Joseph est \u00e9galement passionn\u00e9 par la musique, car c’est pour lui un moyen de s’exprimer. \u00ab Mon r\u00eave est de devenir DJ un jour. J’ai parfois du mal \u00e0 communiquer, mais la musique est un moyen pour moi de m’exprimer. M\u00eame si j’ai parfois envie de me cacher du monde et de pleurer, je dois me rappeler que Dieu conna\u00eet pourquoi je suis ainsi. Il m’a donn\u00e9 cette charge parce qu’il savait que je pouvais la porter. Le fait d’\u00eatre n\u00e9 sans m\u00e2choire m’a donn\u00e9 une vision diff\u00e9rente de la vie et a fait de moi ce que je suis aujourd’hui. \u00bb<\/p>\n\n\n\n

Cr\u00e9dit photo : marca<\/p>\n","protected":false},"excerpt":{"rendered":"

Un homme qui a \u00e9t\u00e9 victime de moqueries tout au long de sa vie a r\u00e9v\u00e9l\u00e9 qu’il ne laisse plus sa condition impacter sa vie. Joseph Williams, 41 ans, de Chicago, est n\u00e9 avec une maladie rare appel\u00e9e syndrome facial otofacial. Apr\u00e8s avoir rencontr\u00e9 sa femme, Vania, 39 ans, en 2019, les deux se sont …<\/p>\n","protected":false},"author":63,"featured_media":328263,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[407,163558,196430],"class_list":["post-328262","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-amour","tag-machoire","tag-otofacial"],"yoast_head":"\n\u00c9tats-Unis : un homme n\u00e9 sans m\u00e2choire trouve l'amour<\/title>\n<meta name=\"description\" content=\"Joseph Williams, 41 ans, de Chicago, est n\u00e9 avec une maladie rare appel\u00e9e syndrome facial otofacial.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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